Tell me about your kidneys

Calling on all patients, but especially those with kidney ailments. I have been in the Assess AKI (Acute Kidney Injury) study since 2011, and on August 14 and 15, 2017, I will be on a patients’ panel at the Kidney Precision Medicine Project.

I was fortunate in 1990 to recover kidney function after a short time on dialysis (after ACL surgery, blood clots and pulmonary embolism). So I hardly think I qualify to say much about a kidney patient’s experience.

Which is why I would like to hear from you. What are your hopes and fears, likes and dislikes about doctors, hospitals, dialysis, transplants? If you could say one thing to an assembly of scientists and doctors, what would it be? Precision kidney medicine? What would that be to you? What would you want from it?